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Reading Group

We are an open reading group that meets every first Tuesday of the month at 15:00 c.t. at the office to read a selected paper. Papers can be voted on up to 14 days before the reading group meeting, then the one with the most votes gets selected.

Trusted Research Environments and FAIR Sensitive Data

Topics should include, but are not limited to:

  • Trusted Research Environments
  • FAIR Principles
  • Data Management
  • Sensitive Data Infrastructures/Processes/etc.

Open Access

Only papers that are open access can be submitted to be voted on. Other papers are not accepted.

Meetings

2022-10-04
  • Jones, K. H., Ford, D. V., Jones, C., Dsilva, R., Thompson, S., et al (2014). A Case Study of the Secure Anonymous Information Linkage (SAIL) Gateway: A Privacy-Protecting Remote Access System for Health-related Research and Rvaluation. Journal of Biomedical Informatics, 50, p.196–204. DOI: 10.1016/j.jbi.2014.01.003
    [3 votes — 66%]
2022-09-06
  • Boeckhout, M., Zielhuis, G., Bredenoord, A. (2018). The FAIR Guiding Principles for Data Stewardship: Fair Enough? European Journal of Human Genetics, 26(1), p.931–936. DOI: 10.1038/s41431-018-0160-0
    [4 votes — 50%]
2022-08-02
  • Wilkinson, M., Dumontier, M., Aalbersberg, I. et al (2016) The FAIR Guiding Principles for Scientific Data Management and Stewardship. Scientific Data, 3(160018). DOI: 10.1038/sdata.2016.18
    [0 votes — 100%]

Paper Collection

2022
  • Corujo, L., 2022. Who Is the FAIRest of Them All? Authors, Entities, and Journals Regarding FAIR Data Principles. Publications, 10(3), p.1-38. DOI: 10.3390/publications10030031
    [PDF]

  • Franken, J., Birukou, A., Eckert, K., Fahl, W. et al, 2022. Persistent Identification for Conferences. Data Science Journal, 21(11), p.1-18. DOI: 10.5334/dsj-2022-011
    [PDF]

  • Graham, M., Milne, R., Fitzsimmons, P. and Sheehan, M., 2022. Trust and the Goldacre Review: why Trusted Research Environments are not about Trust. Journal of Medical Ethics. DOI: 10.1136/jme-2022-108435
    [PDF]

  • Martorana, M., Kuhn, T., Siebes, R. and van Ossenbruggen, J., 2022. Aligning Restricted Access Data with FAIR: a Systematic Review. PeerJ Computer Science, 8(e1038). DOI: 10.7717/peerj-cs.1038
    [PDF]

  • Scheffler, M., Aeschlimann, M., Albrecht, M., Bereau, T. et al, 2022. FAIR Data Enabling New Horizons for Materials Research. Nature, 604, p.635–642. DOI: 10.1038/s41586-022-04501-x
    [PDF] [Preprint]

  • Scerri, S., Tuikka, T., de Vallejo, I.L. and Curry, E., 2022. Common European Data Spaces: Challenges and Opportunities. Data Spaces. p.337–357. DOI: 10.1007/978-3-030-98636-0_16
    [PDF]

  • Weise, M., Kovacevic, F., Popper, N. and Rauber, A., 2022. OSSDIP: Open Source Secure Data Infrastructure and Processes Supporting Data Visiting. Data Science Journal, 21(1), p.4. DOI: 10.5334/dsj-2022-004
    [PDF]

  • Wilde, K., Anderson, L., Boyle, M., Pinder, A. and Weir, A., 2022. Introducing a new Trusted Research Environment: the Safe Haven Artificial Platform (SHAIP). International Journal of Population Data Science, 7(3). DOI: 10.23889/ijpds.v7i3.2056
    [PDF]

2021
  • Cox, N., Bernard-Salas, J., 2021. Scientific Data Applications for Science Analysis Platforms. Astronomical Data Analysis Software and Systems XXX, 532. p.19-23.
    [PDF]

  • Rauber, A., Gößwein, B., Zwölf, C.M., Schubert, F. et al, 2021. Precisely and Persistently Identifying and Citing Arbitrary Subsets of Dynamic Data. Harvard Data Science Review, 3(4). DOI: 10.1162/99608f92.be565013
    [PDF]

  • UK Health Data Research Alliance and NHSX, 2021. Building Trusted Research Environments. Principles and Best Practices. Towards TRE Ecosystems. DOI: 10.5281/zenodo.5767586
    [PDF]

2020
  • Lee, D., Kohlbrenner, D., Shinde, S., Asanovic, K. et al, 2020. Keystone: an Open Framework for Architecting Trusted Execution Environments. Proceedings of the 15th European Conference on Computer Systems, p.1-16. DOI: 10.1145/3342195.3387532
    [PDF]

  • Williamson, E., Walker, A., Bhaskaran, K., Bacon, S. et al, 2020. Factors associated with COVID-19-related death using OpenSAFELY. Nature, 584(7821), p.430-436. DOI: 10.1038/s41586-020-2521-4
    [PDF]

2019
  • Cuggia, M. and Combes, S., 2019. The French Health Data Hub and the German Medical Informatics Initiatives: Two National Projects to Promote Data Sharing in Healthcare. Yearbook of Medical Informatics, 28(1), p.195-202. DOI: 10.1055/s-0039-1677917
    [PDF]

  • Remy, L., Ivanovic, D., Theodoridou, M., Kritsotaki, A. et al, 2019. Building an Integrated Enhanced Virtual Research Environment Metadata Catalogue. The Electronic Library, 37(6), p.929-951. DOI: 10.1108/EL-09-2018-0183
    [PDF]

2018
  • Boeckhout, M., Zielhuis, G., Bredenoord, A., 2018. The FAIR Guiding Principles for Data Stewardship: Fair Enough? European Journal of Human Genetics, 26(1), p.931–936. DOI: 10.1038/s41431-018-0160-0
    [PDF]

  • Elliot, M., O'Hara, K., Raab, C., O'Keefe C.M. et al, 2018. Functional Anonymisation: Personal Data and the Data Environment. Computer Law & Security Review, 34(2), p.204-221. DOI: 10.1016/j.clsr.2018.02.001
    [PDF]

  • Wilkinson, M., Sansone, S-A., Schultes, E., Doorn, P. et al, 2018. A Design Framework and Exemplar Metrics for FAIRness. Scientific Data, 5(180118). DOI: 10.1038/sdata.2018.118
    [PDF]

2017
  • Mons, B., Neylon, C., Velterop, J., Dumontier, M. et al, 2017. Cloudy, Increasingly FAIR; Revisiting the FAIR Data Guiding Principles for the European Open Science Cloud. Information Services & Use, 37(1), p.49-56. DOI: 10.3233/ISU-170824
    [PDF]

  • Popper, N., Florian, E., Mayer, R., Bicher, M. et al, 2017. Planning Future Health: Developing Big Data and System Modelling Pipelines for Health System Research. Simulation Notes Europe, 27(4), p.203-208. DOI: 10.11128/sne.27.tn.10396
    [PDF]

2016
  • Desai, T., Ritchie, F. and Welpton, R., 2016. Five Safes: Designing Data Access for Research. Economics Working Paper Series.
    [PDF]

  • Gkelis, S. and Panou, M., 2016. Capturing Biodiversity: Linking a Cyanobacteria Culture Collection to the "Scratchpads" Virtual Research Environment Enhances Biodiversity Knowledge. Biodiversity Data Journal, 4(1). DOI: 10.3897/BDJ.4.e7965
    [PDF]

  • Wilkinson, M., Dumontier, M., Aalbersberg, I. et al, 2016. The FAIR Guiding Principles for Scientific Data Management and Stewardship. Scientific Data, 3(160018). DOI: 10.1038/sdata.2016.18
    [PDF]

2014
  • Jones, K., Ford, D., Jones, C. and Dsilva, R., 2016. A Case Study of the Secure Anonymous Information Linkage (SAIL) Gateway: A Privacy-protecting Remote Access System for Health-related Research and Evaluation. Journal of Biomedical Informatics, 50(1), p.196-204. DOI: 10.1016/j.jbi.2014.01.003
    [PDF]
2013
  • Candela, L., Castelli, D. and Pagano, P., 2013. Virtual Research Environments: An Overview and a Research Agenda. Data Science Journal, 12(1), p.75-81. DOI: 10.2481/dsj.GRDI-013
    [PDF] [PDF2]

  • Sarwara, M., Doherty, T., Watt, J. and Sinnott, R., 2013. Towards a Virtual Research Environment for Language and Literature Researchers. Future Generation Computer Systems, 29(2), p.549-559. DOI: 10.1016/j.future.2012.03.015
    [PDF]

2012
  • Scholz, M. and Goerz, G., 2012. WissKI: A Virtual Research Environment for Cultural Heritage. Frontiers in Artificial Intelligence and Applications, 242(1), p.1017-1018. DOI: 10.3233/978-1-61499-098-7-1017
    [PDF]
2011
  • Lauter, K., Naehrig, M. and Vaikuntanathan, 2011. Can Homomorphic Encryption be Practical? Proceedings of the 3rd ACM workshop on Cloud computing security workshop, p.113-124, DOI: 10.1145/2046660.2046682
    [PDF]
2010
  • Ahmed, S.F., Rodie, M., Jiang, J. and Sinnott, R.O., 2010. The European Disorder of Sex Development Registry: A Virtual Research Environment. Sexual Development, 4(1), p.192-198, DOI: 10.1159/000313434
    [PDF]